Living with hidradenitis suppurativa (HS) is a deeply personal experience, and no two journeys are exactly alike. Every individual has different symptoms, priorities, challenges, and treatment goals. This shared decision-making tool was developed to help ensure those unique experiences are reflected in conversations about care.
Designed in collaboration with people living with HS and informed by real patient perspectives, this resource encourages individuals to reflect on what matters most to them before meeting with their healthcare provider. From pain and drainage to sleep disruption, mental health, work, relationships, treatment burden, and long-term disease management, the tool helps patients identify the issues that have the greatest impact on their daily lives.
By organizing priorities and preparing for conversations with healthcare providers, this resource supports more meaningful discussions and helps ensure treatment decisions are informed by both clinical expertise and patient preferences.
Rather than taking a one-size-fits-all approach, the tool recognizes that successful HS management looks different for every person. Whether the goal is reducing flares, minimizing pain, improving quality of life, simplifying treatment, or achieving better long-term disease control, it is designed to help patients communicate their needs with confidence.
Created with direct input from the HS community, this resource reflects the lived experiences, challenges, and priorities of those navigating the condition every day. Its purpose is to empower patients to take an active role in their care and foster stronger, more collaborative relationships with their healthcare teams.
Living with hidradenitis suppurativa (HS) is a deeply personal experience, and no two journeys are exactly alike. Every individual has different symptoms, priorities, challenges, and treatment goals. This shared decision-making tool was developed to help ensure those unique experiences are reflected in conversations about care.
Designed in collaboration with people living with HS and informed by real patient perspectives, this resource encourages individuals to reflect on what matters most to them before meeting with their healthcare provider. From pain and drainage to sleep disruption, mental health, work, relationships, treatment burden, and long-term disease management, the tool helps patients identify the issues that have the greatest impact on their daily lives.
By organizing priorities and preparing for conversations with healthcare providers, this resource supports more meaningful discussions and helps ensure treatment decisions are informed by both clinical expertise and patient preferences.
Rather than taking a one-size-fits-all approach, the tool recognizes that successful HS management looks different for every person. Whether the goal is reducing flares, minimizing pain, improving quality of life, simplifying treatment, or achieving better long-term disease control, it is designed to help patients communicate their needs with confidence.
Created with direct input from the HS community, this resource reflects the lived experiences, challenges, and priorities of those navigating the condition every day. Its purpose is to empower patients to take an active role in their care and foster stronger, more collaborative relationships with their healthcare teams.
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