How Detroiter’s are Caring for their HS
Managing HS requires access to knowledgeable providers, effective treatment plans, and sometimes alternative approaches when traditional care falls short. This section explores who is diagnosing HS, where people receive care, and the alternative methods respondents use to manage their condition.
The journey towards diagnosis
For many living with HS, the journey to diagnosis can be long and frustrating, marked by misdiagnosis, dismissal, and years of uncertainty. Below, the charts break down survey respondents’ diagnosis status and the healthcare providers who identified their HS. These insights shed light on how people are being diagnosed, who is recognizing HS, and where gaps in early detection still exist.
Where Are HS Warriors Receiving Care?
For many, receiving a diagnosis is just the first step—accessing consistent, reliable care is an ongoing challenge. HS warriors often navigate a complex healthcare system, seeking treatment from multiple providers to manage their condition.
The charts below highlight where survey respondents currently receive care. Respondents are able to select multiple care sources.
Alternative Support & Community Resources
For many HS warriors, the traditional healthcare system isn’t enough. When doctors dismiss their pain, when medications fall short, they turn elsewhere. This includes alternative resources — naturopathic centers/holistic clinics and herbalist.
Press play on each chart below to show where survey respondents learn about HS, broken down by gender, age, income, and Hurley Stage.