Care Satisfaction & The Barriers That Impact It


Barriers to Accessing Care

This section explores the key obstacles our HS warrior survey respondents encounter and examines how these barriers vary by gender, age, and income.


How Does Mental Health Affect Seeking Care?

For many, mental health struggles are just as debilitating as physical pain. Overall, 59% of the HS Warrior survey respondents said mental health impacts their ability to access care. These findings emphasize that HS care must go beyond treating symptoms—it must address the mental and emotional toll of the disease.


For those with HS, accessing care goes beyond simply making an appointment—it’s about being heard, respected, and treated with dignity. While 80% of respondents reported being satisfied with their care, most still face at least one major systemic barrier that limits access to quality treatment.


Satisfaction with Care

This section examines survey respondents’ satisfaction with their current HS care, analyzing how experiences vary by zip code, gender, income, and Hurley Stage. These insights help highlight who is receiving effective care, where gaps exist, and how different factors influence patient satisfaction.


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Access to Care